Hemophilia and other blood disorders affect the blood’s ability to clot properly, leading to increased bleeding and difficulty in healing after injuries or surgeries.

Sticker Shock, Then Hope At first, I figured gene therapy was just… out of reach. All these news stories about million-dollar cures for rare blood disorders—honestly, my gut reaction was, “There’s no way. Sounds like something only TV millionaires could touch.” Maybe you’ve had that thought, too? But then I met a mom at a […]

(img by MIT Technology Review) Why the Price Tag Shocks At first, I thought gene therapy was just another fancy buzzword—a magical cure reserved for millionaires or headline-grabbing clinical trials. I’d read about people with hemophilia or sickle cell disease paying six or seven figures for a single treatment and honestly, my jaw dropped. Have […]

(img by MDPI) Let’s Get Real About Prices Okay… let’s not sugarcoat this. Is there anything scarier than hearing you need a life-saving treatment, then quietly panicking when you find out the price tag is almost half a million dollars? Maybe you’re here because you or someone you love just heard the words “Abecma” and […]

>Have you ever had one of those days where you wake up sore, a little lazier than you used to be, and wonder—”Am I just getting older… or is something off?” That’s how my uncle Bob felt last year. He blamed it on late-night TV binges and too much BBQ (don’t ask how many ribs). […]

(img by Multiple Myeloma Research Foundation) Let’s Start With the Real Stuff It’s exhausting, isn’t it? You get through chemo, stem cell transplants, maybe a dozen pill bottles on your nightstand… only to hear the words “your myeloma is back.” Ugh, again?! If any of this sounds close to home, you’re absolutely not alone. Multiple […]

(img by Understanding Cancer Immunotherapy Research) No More Waiting Games Let me set the scene. Picture yourself finally bouncing back after a round (or five) of intense treatment for multiple myeloma. You’re tentatively optimistic, maybe even daring to plan that much-needed vacation. But then—you feel tired again. Blood test results look strange. Your doctor calls […]

Ever Wonder Why Yours Stands Out? At first, I thought it was nothing. Just a random piece of trivia I filed next to “what’s your star sign?” and “do you like pineapple on pizza?” But then, my best friend found out she had o negative blood type after a blood drive at work, and suddenly […]